I don't even remember all the drugs Michael was on at this point. We were starting to see upwards of 100 sz's per day. Had to put Michael on Ativan and Lorazepam to stop the seizures. It was like watching a drunk kid, he couldn't walk or say his ABCs. Heartbreaking to see your child like that.
Took a couple of days off from work and Michael and Dad flew to Boston to go to Mass General to see their specialists.
Learned about a potential new treatment (diet) LGIT. Why not-let's give it a try.
No luck yet-Michael was showing signs of cerebral palsy at times...I remember a call with one of the Dr's from Children's-all he could say is he remembers Michael and he is "so sorry were going through this." Doose Syndrome presents in rougly 3-5% of all epilepsy cases.
Wednesday, March 31, 2010
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